Medical Research Council: Haemophilia

Scope and Content

Large file relating to the treatment of individuals diagnosed with haemophilia. This begins with correspondence from 1950, largely with Sir Weldon Dalrymple-Champneys who raises his concerns about the lack of available treatment and general lack of understanding for people with the condition resulting in a preliminary meeting to discuss the matter held on 13 March 1950 (minutes included). Following on from early discussions a Haemophilia Committee was established by the Medical Research Council in 1952 with Wilkinson acting as Chairman and with a view to establishing a haemophilia service throughout the country. The majority of the rest of the contents of the file relate to the Committee's work.

There is extensive correspondence between Wilkinson and the Medical Research Council, namely R.H.L. Cohen, Grace W. Williams, Margaret Gorrill, and Arthur Landsborough-Thomson, concerning the establishment of the committee, its composition and becoming chair, possible haemophilia centres and their establishment, arrangement of meetings, the Central Register of Haemophiliacs, haemophilia cards and forms, the human anti-haemophilic factor of Kekwick and Wolf, cost of distribution of anti-haemophilic globulin, A.H.G. specification, formation of a working party to tackle difficulties associated with the production of human anti-haemophilic globulin, congenital fibrinogenopenia, Wilkinson's grant for expenses, tests of Dr Timperley's egg white preparation, and finally the disbanding of the Haemophilia Committee in its current form. The minutes and agenda for some committee meetings are also contained in the file

There is further general correspondence with members of the committee, most often Dr R.G. Macfarlane of The United Oxford Hospitals, discussing such matters as antihaemophilic globulin and supplies of it, use of the acronym A.H.G, and financial assistance. Of note is a letter from M.G. Nelson of the Royal Victoria Hospital, Belfast regarding a survey of all their haemophiliacs with regard to education and employment and enclosing the resultant data containing patient names. There is also correspondence with Dr E. Neumark concerning their relationship with the International Haemophilia Society, and with both Crookes Laboratories Limited and S Maw Son and Sons Limited concerning specifications for the production of anti-haemophilic globulin.

There are a number of short reports etc. which include the following:

  • The diagnosis of haemophilia and diagnostic tests
  • Progress of work on anti-haemophilic globulin considered at the Haemophilia Committee meeting, 11 January 1957.
  • Report of a conference held in July 1957 at the Medical Research Council regarding the production of anti-haemophilic globulin.
  • Specification for supply of animal antihaemophilic globulin.
  • Report of Trial of A.H.G. Assay by Dr Rosemary Biggs
  • Updated lists of haemophilia centres
  • Haemophilia, some useful notes and advice. Issued by the Ministry of Health and Department of Health for Scotland, 1956.

The file also includes a black and white photograph of a meeting of the Haemophilia Society in Manchester on 9 April 1961.

Conditions Governing Access

This file contains personal medical information of several individuals that is less than 100 years old and closed under the terms of the Data Protection Act 1998. Please consult the archivist before issuing.